Sunday, August 23, 2009

chemo update 4. no frills edition.

Chemo #4 update and other stuff...

Thursday went well, Saif sat with me and almost taught me how to play chess on his computer except... I don't really remember what to do. Something about rooks and knights and L shapes and checkmates but it's all a bit blurry now. I think he thinks I have the potential to play this game based on my cunning in other games of strategy... Then we listened to music and did a whole bunch of time wasting tv show chatting with my awesome nurse... and then it was time to go. I forgot to pick up my anti-nausea meds on the way out, and realized it after I was already home. Luckily, our hero Saif volunteered to pick me up at 8AM and take me back to the doctor when they opened, in order to get my white blood count shot and to pick up my meds in time to take them. 

This round's side effects are still kicking in, as per usual. Friday was mostly fine (I hung out with Allie, Sam, and Mama G!), and crashed a bit early. Saturday was great, I slept in and met Greg (with a surprise appearance by Wojo and a lovely meet and greet with my favorite boyfriend of a friend turned friend in his own right, Roman) for the movies. We saw Inglourious Basterds, the new Quentin Tarantino movie with Brad Pitt. Not bad. A bit bloody but definitely funny and crazy in parts... (true QT). I came home and crashed some more, and woke up around 11PM to go to The Raven for Mike's little bday get together. So nice to live down the street from a great dive bar... almost zero effort to show up and buy someone a Schlitz and sing along to Al Green... Promptly crashed out again around 2AM...

Now it's Sunday, traditionally the worst day and has been consistently crappy. I woke up to some beautiful weather and had the strength to waltz down to the 7-11 for the Times and the Post but by the time I had made my coffee and gotten to the Travel section I was dozing off. Today I have been feeling really weak and tired, unable to really move around without a concerted effort, and generally sick... just like the mini-flu (thanks to the white blood count shot). At times I think about how much better I would feel if I was just getting chemo and not this stupid Neulasta shot, but then I remember the stories I have heard about people getting neutropenia (their white blood counts go so low that they have no infection protection)... they end up in the hospital for days, they can't eat fruits and vegetables, etc. and that sounds absolutely terrible! I would rather feel like I have a hangover for two days every other week than to be in the hospital. So, I will suck it up. 

Other side effects, same as last time, a bit of indigestion in my throat (like something's stuck) and a numb mouth that makes food a bit... uninspiring. 

Hair update: it's still there, though it's definitely coming out. I don't really know how to explain it other than I started out with a lot. As grateful as I am for not having to wear a wig just yet, I am feeling a bit anxious about it and afraid that I have lost some of the bravery I was holding for the big head shaving experience. I worked myself up to this point where I was like, "whatever it's just hair, it will grow back" and recently, as I keep waking up to hair, I find myself secretly wishing it will never come out. This is against logic however, because it is definitely coming out (just slowly). 

For those keeping track, this was four of twelve infusions, so I am 1/3 done! It is hard to believe that this much time has passed, but I am also aware that the effects might be cumulative and that it will be getting a bit worse. My hope is that I can just get through it with minimal damage to my work and social lives. In an ideal world I would actually be able to make progress in those two areas, but I will settle for equilibrium and maintenance...





Thursday, August 13, 2009

this post is probably only interesting to social workers...


Yesterday I listened to a short web training about interviewing traumatized clients... it started me on a big kick of continuing education... I have been a real life licensed social worker for a while now and it hasn't quite hit me yet that I am doing some real clinical case management! I have an MSW student coming in the Fall, so I am going to spend the next three to four weeks doing some intensive study into trauma theory, crisis intervention, and our preferred MOI 'solution-focused brief therapy'

for my grand social work overhaul of my program, i am going to re-institute eco-maps, process recordings, and all my favorite stuff from grad school! it's gonna be a party!

mmmm.... eco-maps.....

Wednesday, August 12, 2009

My family likes it the old-fashioned way, but here's a repost


Hi Family,

Well, I had chemo 3 of 12 last Thursday and it went OK, the side effects lasted a day or two longer than they did last time (BUT i had friends in town last weekend and might have pushed myself a little too hard). I am still feeling a little under the weather in a non-specific way, haha. My chest feels a little dry and wheezy and cold and I don't really know another way to describe that! I am not necessarily coughing a lot, nor am i necessarily out of breath, i am just ...conscious of my lungs like i haven't been before...

No pain though, except a really teeny headache that may be related to the outrageous heat/lack of caffeine/and stressful events at work. I am feeling quite tired when I wake up and go to bed... it takes me a while to get motivated but in general i have been okay at work once I get started. The Neulasta shot pain/soreness did come on Saturday and Sunday, but then was gone right on schedule with only one and a half days of tylenol this time. I heard that it does start to get better with each shot.

I have started to lose my hair as I noted in the last email, but it is mercifully hanging on (and it's weird because the longer it takes to fall out, the more anxious i am getting about it... like, effing just fall out already and be done with it!), but I am taking it as a little gift from the universe that i don't have to wear a wig during the first nasty heatwave of the summer here!! I hope it hangs on til next week!! I think the 12 or so years of dyeing my hair has done something to strengthen it... the other thing is my hair must be really thick, because it definitely falls out by the handful several times a day, and you can't really tell. (I can tell). I have to secretly admit that i am looking forward to having an all out dramatic shaving my head day. I sort of envision it like when Natalie Portman gets her head shaved in V for Vendetta... only of course I won't be in a secret fake prison...

my next chemo is august 20th. I thought you might be interested in my blog as well. I realize that i updated about chemo #3 on my blog and then posted the link on facebook but not all of you are on that! so here you go

Friday, August 7, 2009

Chemo Update #3



Hey all! 

Well, here is your third chemo update of twelve... but first a little pre-chemo recap...

Last weekend APL came to visit and we went to see some pretty awesome art at the National Gallery's East Building and the National Portrait Gallery, and we did the tourist thing which I hadn't done in years... 
He showed me the movie Atonement which absolutely shocked me and I loved it. 
Pictures from the galleries to come... 
I had an amazing weekend. 


Then Wednesday Jackie flew up from Florida to hang out with me for the weekend, and it's been great! We are getting excited about her wedding in March in Miami Beach (a beach wedding! cuban food, hot dancing, and I get to wear a fancy dress with no shoes, which come to think of it is pretty much how I end most nights that I wear a fancy dress....). Yay! 

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So, here's the dirt on chemo 3: I came in a little nervous because my red blood count was way low at the last blood draw, and they threatened me with yet another shot in addition to my white blood count shot if I didn't raise it. So, APL and I ate a fair amount of red meat, hahah, and I have been eating spinach whenever possible. And I have been spacing out my coffee and breakfast as I hear that caffeine reduces your body's ability to absorb iron...WELL... it WORKED!!! My count was way up and the nurse was really happy (no shot!... well, no extra shot!). So chemo went well, no issues. Took a bit longer than normal because I had the slower but thorough nurse (let's be real, it's not like i have plans on chemo days and I didn't mind at all), but afterwards Jax and I still had time to go to the post office and do some other small errands. 

Last night we just watched TV and vegged out and then sweet Noah who lives around the corner came over and hung out for a bit on the stoop (amazingly cool weather yesterday, i was in shock!)... and then he gave me a present of two framed beautiful photographs he had taken. Really, just gorgeous photos that were "cheer you up" photos and they worked! I am gonna bring them to my office so i can have something nice to think about and look at there (which those of you know what I do, know is important)

Today I have my white blood count shot at noon, and until then I am going to try to get some work done... This afternoon and evening I think I will do my best to keep Jax entertained and try to see some DC stuff...

Dani comes in the morning and then we go to CFA with Allie and Sam... then at night we are going to see Paper Heart with Farrah... Then Sunday we are going to have brunch with Wojo, perhaps squeeze in a museum, and then Dani and Jax leave for NYC. I wish I was coming with them!!! 

But alas, I have an insane day at work on Monday and I need to be on my top game...I am in charge of drafting up a comprehensive communications plan (e.g. target audiences, tactics, measurements, etc.) and I am more than a little nervous to get the feedback, but hoping it will be constructive so I can learn/improve. After all, that's what it's all about when you've been at your job for only seven months, right?!

Well, that's all for now, as I have to work on said plan!

I hope you're all doing well. 

Oh, and I wanted to give a special shout out to the following people even though I am about to send out thank you cards
Marie and Dave for the letter
Sophie and Rube for the letter
Al for the letter and coloring book page
Emily for the constant organic snacks
Janet and Jen for the vegan baked goods
Meghan McMillan for the awesome necklace
Allie for the Peopod card and watch
Jackie for coming to visit me and the .... well, the thing that's a secret but that I am so grateful for
Dani for coming to visit me!
APL for coming to visit me and for being sweet and for teaching me about modern art even though I didn't understand a significant portion of it...
Uncle Mike and Aunt Barri for the special package they sent me last week with Grammie's stuff
Saif, Farrah, Galen, and Josh for moral support, distracting and fun field trips, and just general fun and goofing off... :)

and of course, the universe. thank you, universe.



UPDATE Saturday: Somewhat rough day yesterday with fatigue and general yuckiness. Hoping today goes much better as it's quite packed with stuff to do!